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Let down by Stafford hospital…

I need a bloomin’ massive hug. And Cake. And a box of tissues right now.

It’s probaly not a good idea to rant on my blog after all the bad press Stafford Hospital have had, but then, it’s MY blog and I use it to share parenting stories, issues and news. And news this is…

This news isn’t good. In fact it’s damn right rubbish.

My little girl B (3) keeps dislocating her joints. I’ve written about it more here. It’s so unpsetting to see – she is so very brave, and the majority of times, on our way to hospital they pop back in. This week her leg has popped 3 times, her arm last week popped in and out in a couple of seconds, but those seconds are so painful, frightening and upsetting for a little girl.

B was referred 3 weeks ago to SDGH after yet another hospital visit, only to be then rejected by the hospital as they ‘no longer take refs for orthapedics, so you’ll have to wait for another appointment.’

Wait we did.

Then I called the hospital who had no record of B on their system. Then I called our doctors practice.

To cut a long story short (as told to me by our doctors receptionist) – Stafford hospital should never have accepted the appointment, and should have notified the doctors. After much upset on my part and calling a few times, an emergency appointment has been given for, wait for it,  DECEMBER!

Another two months of painful, frightening experiences which we STILL have no explanation for.

In desperation I called our private healthcare that we’ve  and (of course as we had guessed) she’s not covered as she has been to hospital within a year for symptoms of a suspected condition (still undiagnosed).

I’ve supported our local hospital when it was under attack and constant threat of closure. I write and tweet and Facebook about the amazing staff and treatment, and now I feel totally and utterly let down.

They have let my little girl down. A 3 year old little girl who now has to wait even longer to be seen by a specialist – In Wolverhampton!

 

 

 

16 Comments

  • Kelly Wiffin

    I think this is terrible. For an adult to wait for an appointment is hard enough but a child should never have to wait for an appointment, not when the child is going through discomfort. The fact that this is happening regularly your daughter should be seen straight away. I really do hope you get seen very soon, if not immediately!

    • Fi

      Thanks Kelly – My thoughts exactly! She’s 3 and being so very brave but she shouldn’t have to be brave, she should be getting help and treatment and diagnosis!

  • PetitMom

    That’s just insane. Are they sending you to New Cross? If you need any help sweets just let me know, if you still end up down here for a specialist I’m happy to meet with you and buy you a cake, you need it and so does B!

    • Fi

      Yes – New Cross! I had no idea where it was! I’m just so upset and feel so let down by the hospitals incompetence! Poor B is suffering and I’d I hadn’t called the hospital we’d still be waiting to hear!

  • Ramblings Of A Suburban Mummy

    Just not good enough, I hope you get it sorted soon and that B gets the treatment she needs x

    • Fi

      Thanks- Me too! I know ranting won’t get B seen any quicker but perhaps it’ll make them stop and listen and realise mistakes cause not just problems, but suffering too!

  • Kara

    I would like to wish that you are alone here but unfortunately it is not the case, more often than not our complaints are not with the staff but the system, waiting lists and politics make it a complete joke, this is totally unacceptable for poor B, I really hope you get a quicker appointment xxx

    • Fi

      Thanks Kara – totally agree, sadly this time Stafford Hospital admin incompetence errors have caused distress, pain and upset. It’s just so unfair and not right.

  • Liz Crudgington (@freelanceliz)

    Sending hugs, cake and tissues! Have you called Wolverhampton? I would make sure it’s a specialist paediatrict orthopaedic team too, and also ask GP about physio – even without a diagnosis they should be able to do something to stabilise the joints in the meantime. More hugs – it’s awful that she should have to wait so long x

  • Crystal Jigsaw

    That’s pretty rubbish even by NHS standards. Children should be given priority as should urgent cases, and this is most definitely an urgent case. I’d made a big fuss, get an appointment with your GP and make a fuss there, and ring the hospital every day, making a nuisance of yourself. I reckon they’ll probably find you a magic appointment at some stage. Be brave and be firm. Good luck.
    CJ x

    • Fi

      Thanks CJ! I’ve made a pretty big nuisance of myself today. I just want them to understand I’m not being a fuss bag- she’s in pain and she’s a small child suffering.

      I’ll be calling daily I think…

  • HELEN

    poor B, it’s just not good enough when she’s in so much pain. I hope you manage to get an earlier appointment for her x

    • Fi

      Thanks lovely. It’s not good enough is it? You’d think after all the bad press they’d be super efficient now!

  • Pingback: Hypermobility and the Bendy Boo! | Childcare is Fun!

  • Paloma Eterna

    I am an adult with hypermobility syndrome and my child now adult inherited the hypermobility syndrome. You will find it overwhelming at times. Do you own research and apply to your child. Not everybody lives and develops the same conditions. The most important action you have to take is the get B’s muscles stronger to keep joints from dislocating. Swimming and water aerobics and exercise are the best at this age. Do light strengthening at home with no impact. Learn to use the rubber band exercises, some ballet movements are great too.
    I became a gymnast and did well. Now I’m dealing with chronic issues. I don’t let my disability define me, it made me a stronger person. My child is into fitness and healthy habits. There is hope and life happens with hypermobility, we can be happy. Hope you and B are well.

    • Fi

      Thanks for your comment!

      Boo has daily physio and monthly physio at the hospital. She also sees a heart consultant and HMS consultant every 4 months.

      She’s amazingly brave when she dislocates. I can’t believe how brave – at only 4.

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